Infantile Spasms (IS) occur in up to 35% of children with Tuberous Sclerosis. They are a medical emergency. IS are seizures, usually occurring in children under age one, which are often overlooked or misdiagnosed as colic, reflux, or a startle relfex. They can cause catastrophic, permanent damage to a child's developing brain. 

Know the signs to 'STOP' Infantile Spasms. 

 

 

We are pleased to announce that by the end of October 2018, all patients who participated in the EPISTOP project have completed the study. Currently we are analyzing the data and preparing publications. We will keep you informed on the progress. 

Last week, our coordinator prof. S. Jozwiak lectured at the International Child Neurology Congress (ICNC 2018) in Mumbai. His talk about preseizure treatment in TSC was part of the session on Targeted Therapies in Tuberous Sclerosis Complex. 

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EpiXchange brought together the excellence of epilepsy research in Europe for a conference in Brussels on 23 May 2018. The main goal was to showcase major findings from seven large European epilepsy research projects including EPISTOP, discuss the main bottlenecks and recommendations to move forward and to bring research results closer to clinical application. 

A 180' interview at epiXchange 2018 with our coordinator prof. S. Józwiak can be found following the link below: 

https://youtu.be/ynW-JeIyrvs

 

 

On October 20-21, the General Assembly meeting took place in the great beguinage (UNESCO world heritage) in Leuven, Belgium. It was a highly productive and inspiring meeting, attended by all consortium members and the scientific advisory board members.

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